Redressing the health inequity between rural and urban areas
Dr Ramaiah Muthyala, President & CEO, Indian Organisation for Rare Diseases, and associate professor, Experimental Clinical…
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rare diseases
FDA Approves New Therapy for Dravet Syndrome
Fintepla labelling includes a boxed warning stating the drug is associated with valvular heart disease (VHD) and pulmonary…
Dr Lal PathLabs collaborates with ORDI to sensitise India on rare diseases
The association is to raise awareness for the 7,000 documented rare diseases across nine cities